When people with epilepsy come together, something incredible happens. Isolation turns into identity, stigma gives way to solidarity – and perhaps most importantly, our health improves.

And the evidence supports this – when people with epilepsy know other people with epilepsy, they tend to have better health outcomes.

Why? Because when people with epilepsy are more engaged with their health, they make better choices about their health – whether that means remembering our meds, advocating for better care, or simply making better wellness choices.

No one knows epilepsy quite like you know epilepsy. And your experience – the lived experience – can and should be shaping the future of epilepsy care.

But too often, we’re invited into the room but not into the conversation. Our stories are filtered, translated, or flattened to fit someone else’s narrative.

The Otherside Lounge creates real space for real voices—unfiltered, unedited—to uncover truths that don't show up in the data. Here, epilepsy healthcare leaders are listening to your expertise.

Epilepsy doesn’t just challenge us.

It also transforms us.

It creates people with powerfully unique world views—perspectives shaped by a condition that has divided human society for over 4,000 years.

The Otherside Lounge is where we celebrate that greatness—the quiet power, the everyday resilience, the hard-earned wisdom of living with epilepsy.

Here, we control the narrative – shaping a stronger story of what it is to live with epilepsy in the modern world.